Cleaning the nebulizers

Can you guess which batch I took out of the boiling water and which one my husband did?

Hint, hint--remember my husband is a Marine!

Fighting a cold...and winning!!

I had my first clinic appointment with my new cf doctor since I moved back here to NC. I saw him for three years when we were stationed here before so it wasn't really that "new"--just an update. Everything went well. My oxygen sat is back up to normal, where it was before my last exacerbation in June. My FEV1 is taking a little longer than I would like, it is still quite low. I'm a little worried I won't get it back up, I'm always afraid to lose any lung function. I'm feeling quite well so I need to stop worrying about the numbers.


In the evening after we returned home from my appointment my throat started hurting and I could feel drainage down the back of my throat...oh no, another cold! I started taking Elderberry syrup and extra vitamin C and the next morning I felt much better. I continued to fight the cold symptoms all weekend and then last night Lola came down with it. So, I've been wearing a mask on and off, pumping myself with vitamins and Elderberry and hoping I won't develop any other symptoms. I hate these little virus' that decide to attack my lungs, if they could just find the cure for the common cold my cf would be much easier to handle lately! Or of course better yet, a cure for CF would be even better!

What a good sport...

Sully puts up with a lot!

Lola likes to cover him with blankets, bounce on his back, dress him up.

He's such a tolerant dog. They are best friends.

Check out what he looks like with Lola's boas on!

Lola's Funnies

Just had to share a few funny things Lola has said the last few days....

First we were walking into a restaurant tonight and Lola said, "mommy, daddy says they have fresh puppies here" and then my husband, Aaron, said actually she just told me they have "snuggle puppies" here...she was talking about Hush Puppies!

Last week we were out and Lola told me she was cold and then asked "what are these bumps on my arm", I told her they were goose bumps. A little bit later I said it is cold in here, and Lola preceded to tell me "mommy you have mommy bumps!" Our nickname for her is Goose...get it? She's so cute!

We love the beach!!

It is so great to be back near the beach. We took a quick trip out to see the water, no time for "a day at the beach" yet, too busy getting the house in order.

Lola loves the sand but is still a little hesitant with the ocean, who wouldn't be at her age! We'll have to work on that. Have a fun Sunday!

No hitting...

I have to share this quick story, a few days ago my daughter decided to hit me for no apparent reason? I proceeded to say "we do not hit" and put her in a time-out. Lola started to cry, which she does a lot when she's put in a time-out. Finally I asked her why she was crying, "I was just doing your percussion" she said. Nice try! Smart little cookie! How do you punish her after she's just told you she was helping with your treatment. HA! So, she received a long heart to heart about how hitting and percussion are not the same thing. Quick thinking on her part because I know the hitting was not about percussion. Kids are so funny!

Moving day

Wow, it's been awhile. I was having a hard time getting this blog started and then had an unexpected hospital stay so needless to say the blog was put on hold. Since we're in the middle of moving this week I still won't be posting much but wanted to get something out there in case anyone had checked in. I've been following several other cf blogs and have been so inspired by so many stories from cystics that are doing very well healthwise to pre-transplants to post-transplants. I can't believe how many cf blogs are out there! Just when you feel like you're alone...



Happy moving to us!! If moving couldn't be harder I had to come down with a crazy cold virus that sent my lungs into over-drive. I had so much inflammation I spent 8 days in the hospital and 4 weeks--the most time I've ever--spent on iv antibiotics. I've never really been on oxygen so it was a bit scary being in the hospital and hardly being able to get out of bed without O2 on. I didn't want my daughter to see me like this but finally realized after they weren't going to discharge me after my normal 2 days I couldn't go another minute without seeing her. She was so excited to see me she didn't mind the oxygen and even relished visiting the hospital because all the nurses doted on her. I think she had more popsicles and chocolate she's ever had in her life!



We are on the road this week to our new home. We're really excited for the change. The weather is a bit nicer than Virginia and we'll be close to the beach which is never a bad thing. Wish us luck that all our household goods make it and nothing is lost ;-)