Baby steps are good!
Robyn had a stable day yesterday which was nice. She had some small steps, but the best thing is she didn't get any worse.
She did very well overnight - lower heart rate, better blood pressure, and her kidney's seem to be functioning. All good stuff!
This morning they were able to take her off 2 of her 4 blood pressure meds. White blood count is down and her blood gases were stable.
We are hopeful for a productive day and additional steps in the right direction.
I'll be reading the entries from the blog to Robyn today. Not sure how much she can hear us, but we are keeping positive vibes in the room and your well wishes will help.
Today we are thankful for Robyn...a wonderful wife, mother, daughter, sister, grandaughter, niece, cousin, and friend.
Laura
Thursday, November 27, 2008
Wednesday, November 26, 2008
Wednesday Update
Hello,
Robyn experienced another setback over the night. Her blood pressure is extremely low, her kidney's are having difficulties, and the infection is getting worse not better.
As of right now, Robyn can not get her transplant until she stabilizes. We are praying that happens and FAST! The doctors are doing everything they can to bring her back to a proper level to get her back to the top of the transplant list.
We remain positive, especially in the room with Robyn. She is heavily sedated, but one never knows what she can hear. So, we continue to talk to her, pray with her, and cheer her on.
Please continue your prayers and positive thoughts - Robyn needs them!!!
Laura
Robyn experienced another setback over the night. Her blood pressure is extremely low, her kidney's are having difficulties, and the infection is getting worse not better.
As of right now, Robyn can not get her transplant until she stabilizes. We are praying that happens and FAST! The doctors are doing everything they can to bring her back to a proper level to get her back to the top of the transplant list.
We remain positive, especially in the room with Robyn. She is heavily sedated, but one never knows what she can hear. So, we continue to talk to her, pray with her, and cheer her on.
Please continue your prayers and positive thoughts - Robyn needs them!!!
Laura
Tuesday, November 25, 2008
Tuesday Update
Hello Friends and Family,
Today was another tough day in the road to Robyn's transplant. This morning she was placed on a ventilator as her CO2 was sky high and her O2 was too low. In an effort to keep her rested and healthy, she needs the extra assistance of the machine and a rest from the struggle to breathe on her own.
We are hopeful that a donor will be found soon. Robyn's transplant evaluation score keeps rising with each turn and that makes it much more of a confirmation that the next set of lungs that match her blood type will be hers for the taking.
I had just gone home on Sunday, but returned today to be with Robyn, Aaron, and our parents. When I left, she was alert and seeming to turn the bend. However, this infection has the best of her and those lungs that have worked remarkably well for the last 35 years are tired and failing.
While she can't talk due to the ventilator, she can open her eyes, wink, and shake her head yes. She knows we're here and pulling for her and that she has an extended team of cheerleaders - YOU! She is one TOUGH cookie and full of determination. The transplant team is optimistic that a donor may come through in the near future. They are encouraged by the fact that Robyn had been so healthy and active up until a month ago, which makes her a very good candidate for a successful transplant.
We thank all of our friends and family for reaching out to us during this difficult time. Since we are unable to answer the large amount of personal calls and messages, please check the blog frequently for updates. We will update the blog as we learn more on Robyn's status.
XO
Laura
Today was another tough day in the road to Robyn's transplant. This morning she was placed on a ventilator as her CO2 was sky high and her O2 was too low. In an effort to keep her rested and healthy, she needs the extra assistance of the machine and a rest from the struggle to breathe on her own.
We are hopeful that a donor will be found soon. Robyn's transplant evaluation score keeps rising with each turn and that makes it much more of a confirmation that the next set of lungs that match her blood type will be hers for the taking.
I had just gone home on Sunday, but returned today to be with Robyn, Aaron, and our parents. When I left, she was alert and seeming to turn the bend. However, this infection has the best of her and those lungs that have worked remarkably well for the last 35 years are tired and failing.
While she can't talk due to the ventilator, she can open her eyes, wink, and shake her head yes. She knows we're here and pulling for her and that she has an extended team of cheerleaders - YOU! She is one TOUGH cookie and full of determination. The transplant team is optimistic that a donor may come through in the near future. They are encouraged by the fact that Robyn had been so healthy and active up until a month ago, which makes her a very good candidate for a successful transplant.
We thank all of our friends and family for reaching out to us during this difficult time. Since we are unable to answer the large amount of personal calls and messages, please check the blog frequently for updates. We will update the blog as we learn more on Robyn's status.
XO
Laura
Monday, November 24, 2008
Monday Update
Today Robyn was moved to ICU because she was having a difficult time breathing and her O2 saturation level was in the low 80's. The transplant team visited her and they are actively looking for a donor. Since she is now in ICU her evaluation score has increased and the search will become more focused for a transplant sooner-than-later.
Thank you for keeping Robyn and our family in your prayers.
Laura
Thank you for keeping Robyn and our family in your prayers.
Laura
Sunday, November 23, 2008
Sunday Update
Robyn was able to get out of her bed last night for a walk. I'm sure it was nice to stretch her legs since she hadn't walked further than her bedside in over a week. Obviously, she is weak, but determined to gain some of her strength and muscles back. Her weight is down to 110 from 116 and it seems most of that weight was from her muscles.
Mornings are difficult for Robyn as she can't seem to get comfortable. Afternoons and evenings tend to be alright, but the mornings can be aggravating. Today the doctors gave her something that she can take so the morning hours are more comfortable for her.
On another note, I'd like to take this time to thank Robyn's loving husband, Aaron. He is a fabulous advocate for her and such a wonderful person to have by her side. Robyn is truly blessed to have found the "right one" and we are all grateful for him in her life. Thank you Aaron for all you do - especially right now balancing your time between the hospital with Robyn and home with Lola. XO
Laura
Mornings are difficult for Robyn as she can't seem to get comfortable. Afternoons and evenings tend to be alright, but the mornings can be aggravating. Today the doctors gave her something that she can take so the morning hours are more comfortable for her.
On another note, I'd like to take this time to thank Robyn's loving husband, Aaron. He is a fabulous advocate for her and such a wonderful person to have by her side. Robyn is truly blessed to have found the "right one" and we are all grateful for him in her life. Thank you Aaron for all you do - especially right now balancing your time between the hospital with Robyn and home with Lola. XO
Laura
Saturday, November 22, 2008
Relaxing Saturday....
Robyn had a full room last night - me, our Mom, and Dad. We know we aren't suppose to have that many stay overnight, but since yesterday was somewhat of a roller coaster, she welcomed us and we weren't leaving!
This morning we helped give her a bath (she hasn't been able to move to the other floor with a shower yet!) and washed her hair. We joke that everyone is going to want her new hairdo...it's drying with the BiPap strap attached. ;-)
Her doctor changed one of her medications in hopes that it will open up her airways. It seems each doctor has their "go to" drugs and we welcome any alternative suggestions that they have in order to try and knock out this infection.
Robyn's spirits seem a bit higher today as the realization of a pending transplant sinks in. Obviously, she has her concerns, but she is trying to remain positive. It's difficult though since she has so many thoughts and isn't quite sure how to channel them all. Hopefully, some of that will come in time.
Laura
This morning we helped give her a bath (she hasn't been able to move to the other floor with a shower yet!) and washed her hair. We joke that everyone is going to want her new hairdo...it's drying with the BiPap strap attached. ;-)
Her doctor changed one of her medications in hopes that it will open up her airways. It seems each doctor has their "go to" drugs and we welcome any alternative suggestions that they have in order to try and knock out this infection.
Robyn's spirits seem a bit higher today as the realization of a pending transplant sinks in. Obviously, she has her concerns, but she is trying to remain positive. It's difficult though since she has so many thoughts and isn't quite sure how to channel them all. Hopefully, some of that will come in time.
Laura
Friday, November 21, 2008
She did eat cake!
On a lighter note, we were able to celebrate Robyn's 35th birthday today. After 3 weeks apart, she and Lola got to spend some quality time together. Lola enjoyed bringing her a birthday balloon, singing happy birthday, and eating cake that she personally picked out herself due to the red rose on top! We figure the rose was in her mind after a conversation with Grandpa about "65 Roses." ;-) Pictures will come soon....
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