A celebration of Robyn's life will take place on Friday, December 12, 2008 at 1 p.m. at West Side United Methodist Church, 900 S. 7th Street, Ann Arbor, MI 48103.
In lieu of flowers, contributions may be made to a trust fund in honor of Robyn's daughter Lola and/or to the Cystic Fibrosis Foundation. Details on both the trust fund and CFF will be posted shortly.
Thank you to everyone for your beautiful tributes to Robyn. We find peace in learning how many lives she had touched over the years.
Love from Robyn's family....
Tuesday, December 2, 2008
Saturday, November 29, 2008
My little Robyn....
Dear family and friends,
I am so sad to share the news that after some bumps in the road, Robyn lost her battle with cystic fibrosis today. My apologies for those of you that are learning of this tragedy via her blog. She had so many friends (many of whom she knew from the CF community) and I would have no clue how to reach them all to personally share this update.
Her lung infection was so much for her little body that it began to lead to additional problems that she was unable to recover from.
We are deeply saddened by this loss that seems all too sudden given Robyn's good health the majority of her lifetime. We're not sure where to pick-up the pieces and all seem in a bit of shock.
All that knew her are truly blessed to have had her in their lives. She was an incredible wife, daughter, sister, grandaughter, aunt, cousin, and friend. But, most importantly, she was a WONDERFUL mother to her daughter Lola. Of all things in her life, Lola was her biggest accomplishment and the person she cherished the most. In addition, Robyn was fortunate to have found the love of her life in Aaron and we thank him again for his courage over the last month while supporting her during a roller coaster of a stay in the hospital.
We thank you all for your well wishes and notes of support. I truly wish I was writing to let you know that Robyn's infection cleared and a donor had been found. I wanted her to know here on earth what it was like to live a day free of CF...now she will experience that as an angel in heaven....
God Bless,
Laura & Family
I am so sad to share the news that after some bumps in the road, Robyn lost her battle with cystic fibrosis today. My apologies for those of you that are learning of this tragedy via her blog. She had so many friends (many of whom she knew from the CF community) and I would have no clue how to reach them all to personally share this update.
Her lung infection was so much for her little body that it began to lead to additional problems that she was unable to recover from.
We are deeply saddened by this loss that seems all too sudden given Robyn's good health the majority of her lifetime. We're not sure where to pick-up the pieces and all seem in a bit of shock.
All that knew her are truly blessed to have had her in their lives. She was an incredible wife, daughter, sister, grandaughter, aunt, cousin, and friend. But, most importantly, she was a WONDERFUL mother to her daughter Lola. Of all things in her life, Lola was her biggest accomplishment and the person she cherished the most. In addition, Robyn was fortunate to have found the love of her life in Aaron and we thank him again for his courage over the last month while supporting her during a roller coaster of a stay in the hospital.
We thank you all for your well wishes and notes of support. I truly wish I was writing to let you know that Robyn's infection cleared and a donor had been found. I wanted her to know here on earth what it was like to live a day free of CF...now she will experience that as an angel in heaven....
God Bless,
Laura & Family
Friday, November 28, 2008
Friday
Hello,
While Robyn had made baby steps Thanksgiving morning, her afternoon was not as good.
Robyn has some neurological problems that came about in the afternoon yesterday. The doctors are not quite sure why, but figure it is probably because her body is so sick. They are doing additional tests today and we won't know results for 24 to 72 hours. As soon as we know more, we will update the blog.
Please keep your thoughts and prayers focused on a miracle for our Robyn!!
Laura
xo
While Robyn had made baby steps Thanksgiving morning, her afternoon was not as good.
Robyn has some neurological problems that came about in the afternoon yesterday. The doctors are not quite sure why, but figure it is probably because her body is so sick. They are doing additional tests today and we won't know results for 24 to 72 hours. As soon as we know more, we will update the blog.
Please keep your thoughts and prayers focused on a miracle for our Robyn!!
Laura
xo
Thursday, November 27, 2008
Thanksgiving Update
Baby steps are good!
Robyn had a stable day yesterday which was nice. She had some small steps, but the best thing is she didn't get any worse.
She did very well overnight - lower heart rate, better blood pressure, and her kidney's seem to be functioning. All good stuff!
This morning they were able to take her off 2 of her 4 blood pressure meds. White blood count is down and her blood gases were stable.
We are hopeful for a productive day and additional steps in the right direction.
I'll be reading the entries from the blog to Robyn today. Not sure how much she can hear us, but we are keeping positive vibes in the room and your well wishes will help.
Today we are thankful for Robyn...a wonderful wife, mother, daughter, sister, grandaughter, niece, cousin, and friend.
Laura
Robyn had a stable day yesterday which was nice. She had some small steps, but the best thing is she didn't get any worse.
She did very well overnight - lower heart rate, better blood pressure, and her kidney's seem to be functioning. All good stuff!
This morning they were able to take her off 2 of her 4 blood pressure meds. White blood count is down and her blood gases were stable.
We are hopeful for a productive day and additional steps in the right direction.
I'll be reading the entries from the blog to Robyn today. Not sure how much she can hear us, but we are keeping positive vibes in the room and your well wishes will help.
Today we are thankful for Robyn...a wonderful wife, mother, daughter, sister, grandaughter, niece, cousin, and friend.
Laura
Wednesday, November 26, 2008
Wednesday Update
Hello,
Robyn experienced another setback over the night. Her blood pressure is extremely low, her kidney's are having difficulties, and the infection is getting worse not better.
As of right now, Robyn can not get her transplant until she stabilizes. We are praying that happens and FAST! The doctors are doing everything they can to bring her back to a proper level to get her back to the top of the transplant list.
We remain positive, especially in the room with Robyn. She is heavily sedated, but one never knows what she can hear. So, we continue to talk to her, pray with her, and cheer her on.
Please continue your prayers and positive thoughts - Robyn needs them!!!
Laura
Robyn experienced another setback over the night. Her blood pressure is extremely low, her kidney's are having difficulties, and the infection is getting worse not better.
As of right now, Robyn can not get her transplant until she stabilizes. We are praying that happens and FAST! The doctors are doing everything they can to bring her back to a proper level to get her back to the top of the transplant list.
We remain positive, especially in the room with Robyn. She is heavily sedated, but one never knows what she can hear. So, we continue to talk to her, pray with her, and cheer her on.
Please continue your prayers and positive thoughts - Robyn needs them!!!
Laura
Tuesday, November 25, 2008
Tuesday Update
Hello Friends and Family,
Today was another tough day in the road to Robyn's transplant. This morning she was placed on a ventilator as her CO2 was sky high and her O2 was too low. In an effort to keep her rested and healthy, she needs the extra assistance of the machine and a rest from the struggle to breathe on her own.
We are hopeful that a donor will be found soon. Robyn's transplant evaluation score keeps rising with each turn and that makes it much more of a confirmation that the next set of lungs that match her blood type will be hers for the taking.
I had just gone home on Sunday, but returned today to be with Robyn, Aaron, and our parents. When I left, she was alert and seeming to turn the bend. However, this infection has the best of her and those lungs that have worked remarkably well for the last 35 years are tired and failing.
While she can't talk due to the ventilator, she can open her eyes, wink, and shake her head yes. She knows we're here and pulling for her and that she has an extended team of cheerleaders - YOU! She is one TOUGH cookie and full of determination. The transplant team is optimistic that a donor may come through in the near future. They are encouraged by the fact that Robyn had been so healthy and active up until a month ago, which makes her a very good candidate for a successful transplant.
We thank all of our friends and family for reaching out to us during this difficult time. Since we are unable to answer the large amount of personal calls and messages, please check the blog frequently for updates. We will update the blog as we learn more on Robyn's status.
XO
Laura
Today was another tough day in the road to Robyn's transplant. This morning she was placed on a ventilator as her CO2 was sky high and her O2 was too low. In an effort to keep her rested and healthy, she needs the extra assistance of the machine and a rest from the struggle to breathe on her own.
We are hopeful that a donor will be found soon. Robyn's transplant evaluation score keeps rising with each turn and that makes it much more of a confirmation that the next set of lungs that match her blood type will be hers for the taking.
I had just gone home on Sunday, but returned today to be with Robyn, Aaron, and our parents. When I left, she was alert and seeming to turn the bend. However, this infection has the best of her and those lungs that have worked remarkably well for the last 35 years are tired and failing.
While she can't talk due to the ventilator, she can open her eyes, wink, and shake her head yes. She knows we're here and pulling for her and that she has an extended team of cheerleaders - YOU! She is one TOUGH cookie and full of determination. The transplant team is optimistic that a donor may come through in the near future. They are encouraged by the fact that Robyn had been so healthy and active up until a month ago, which makes her a very good candidate for a successful transplant.
We thank all of our friends and family for reaching out to us during this difficult time. Since we are unable to answer the large amount of personal calls and messages, please check the blog frequently for updates. We will update the blog as we learn more on Robyn's status.
XO
Laura
Monday, November 24, 2008
Monday Update
Today Robyn was moved to ICU because she was having a difficult time breathing and her O2 saturation level was in the low 80's. The transplant team visited her and they are actively looking for a donor. Since she is now in ICU her evaluation score has increased and the search will become more focused for a transplant sooner-than-later.
Thank you for keeping Robyn and our family in your prayers.
Laura
Thank you for keeping Robyn and our family in your prayers.
Laura
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