The last few days have been a bit of an emotional roller coaster. Robyn is now listed on the transplant list but the doctors are still trying everything to get her lungs back to where they were or close to it. This was still quite shocking to hear even though we have accepted that a transplant will most likely happen in the future.
Yesterday she spent 5 hours off the BiPap and today another 6. This means she sustained sitting with the oxygen cannula on at 6 liters and her saturation didn't fall too low. We're hoping tonight they can lower the oxygen on her BiPap as this is her last hurdle to get out of the ICU Step Down unit. The goal is to get her upstairs to the normal pulmonary floor tomorrow morning so we can have a birthday party for her and Lola can come visit.
As always thank you for all the prayers and messages. Robyn has her laptop in her room so she is able to check messages when she feels up to it. More updates to follow.
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Stories from a military wife and mother living with Cystic Fibrosis.
2 comments:
Hi Robyn! Sending lots of good thoughts and vibes that you are able to have some bday cake in the step down unit!
Hi Robyn -
Just letting you know that we appreciate your health updates and that we are all thinking of you. Happy Birthday!! My best, Angie
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